The situation I am in now has been given me to change me, if I will only surrender completely to reality as it is given, no longer seeking ways to evade it, even by interior reservations.
Merton
My mom has dementia.
My mom is in dementia.
Dementia has my mom.
demented
[dəˈmen(t)əd]
ADJECTIVE
ORIGIN
mid 17th century: from Old French dementer or late Latin dementare, from demens ‘out of one’s mind’
I am familiar with dementia from an outsider’s point of view.
My husband worked in a facility.
I have known of a few who lived this in their final days.
But now it is real.
The house next door to the EncaustiCastle has been occupied by a young couple for the past three years. They have become dear to me; she, like a daughter.
They are moving out.
What does one do; the world-turning over.
I asked for this.
I sought ‘next’.
I thought it not coming;
my ‘nexts’ all run out.
What does one do; the world-request delivered; shaken.
‘….a bereavement reaction to the leaving of familiar environments.’
Joan Didion
I asked for this.
I know better than to be surprised by this befallen.
My soul knows this opportunity.
Ambiguity
Uncertainty
my mind, eyes;
filling with tears.
There are so many stories within stories behind my mother’s life, and the life she gave me, the way I was raised, who I have become
because of,
in spite of,
the person she is.
There are stories within stories about this ‘like a daughter’
part of my heart; without my intending
recipient of my encouragements,
advocate for my steadfast emboldening.
‘When man does not have firm, calm lines on the horizon of his life-mountain and forest lines, as it were-then man’s most inner will becomes agitated, preoccupied and wistful.’
Joan Didion
What does one do; hope, proclaimed foundation; trust, cornerstone; heartache uncertainty, delivered.
Dislocation; the knot in the game tug-of-war.
Reality; life delivering.
Tugged. Yet expectant.
Heartache. Yet hopeful.
Terrified. Yet trusting.
What to do-evidential finality.
What to do-vacant square feet.
How to move; forward.
How to release; behind.
I asked for this
Forward; undeniably, unmistakably, divinely assigned.
I didn’t know; losing.
I didn’t know!
Trust; this trust.
I asked for this.
My answer.
My world; transforming
Again. Again. Again. Again.
Am I built for this.
The promised land always lies on the other side of a wilderness.
Havelock Ellis
I asked for this.
I prayer for this.
I plead for this.
How do I live this answer
in love.
trish
My mom has dementia. I came out of a 5year retirement from family to be her person…not a mantle that fits well. Gripping onto kindness and compassion while battling back the unforgiven years behind…setting aside plans of travel and ease. Yet when I see her frustration and anger and grief and fear over what’s slipping from her, I can only drop my sword and step lightly.